I am a sulky teen

Last week I went away for a couple of nights (I know, I’m lucky to be able to get away, many carers can’t) but when I came back, absolutely replete with good conversation and good food – I really didn’t want to be here.

I felt I’d expanded back into my old persona. I didn’t feel like fitting myself into that diminished outline of myself I have to inhabit as a carer – that’s to say, a person who has to put someone else’s needs first. I sulked, I disappeared into my room and started texting, I put on my headphones and plugged myself into some music. I didn’t want to drop everything and answer when I was called. I didn’t want to serve up a meal when I wasn’t hungry, or abandon my emails to answer the same question for the tenth time.

I’d had some hassles on the return trip: bad transport connections, having to lug my bag around in the cold. I got back here rather tired and frazzled. I wanted some acknowledgement that I’d had a rather demanding day and a long chilly journey. I didn’t want to be nice to someone who ignored how I was feeling; who just sat there and expected me to wait on them hand on foot. I didn’t want to help them, even though I knew they were old and achy and finding it hard to walk, pick up things or undo buttons. I didn’t care!! No, I didn’t!!

Of course, you can’t be cruel to the one you look after, so, I gritted my teeth and mended my ways. But for a couple of days, I was sulky and begrudging and surly, just going through the motions. Because there’s history, isn’t there, between parents and children, between mothers and daughters? Sometimes it takes a supreme effort for me to overcome that powerful urge to shift back into the old game-playing, power battle that defined our relationship for many years.

I’m not asking for sympathy, it was my choice to move in with mum but – I’m not a selfless saint. Sometimes I’m just a sulky teen, resenting the fact I’ve been ordered to do the washing up.

Talking to strangers

I don’t usually talk to strangers. I think of myself as shy, although I’ve been told I look superior and intimidating.

Anyway, on Saturday, I went to buy a paper and started chatting to the woman in the shop. ‘What are they building over the road? A new supermarket! Goodness! And how will that affect you? Oh dear, that’s terrible.’ On my way home I passed a guy with a cute little dog and I started chatting to him. ‘Oh she’s so pretty! What type of dog is she? What’s her name?’

Is this loneliness? I’m happy in my own company, as they say, and I’m used to living on my own but then I had a social life. Now, I spend most of my time with someone who can’t really have a conversation. Mum and I do have chats, although I know she’ll forget them soon enough. Sometimes, when I’ve been out and seen something interesting, I just can’t stop myself telling her about it, even though I know it will probably make things worse because she won’t understand what I’ve said, and I’ll have to repeat myself and explain it over and over again.

In the same way, I always regret making a casual comment – about a news item, for example: thinking aloud, you might call it. Because mum’s a bit deaf, she doesn’t catch what I’ve said, so she wants to know what it was, but she won’t understand why I’ve said it. And in the meantime, the news item has changed so I have to explain it was the item before last but she’s forgotten what that was; or it’s a drama and I lose the thread of the plot while I tell her why I made some minor, off-the-cuff remark. In the end, it’s simpler to try and say nothing at all.

I’ve been reading that isolation is a big problem among carers. I have the phone and emails to keep in touch with friends, but it is bizarre to be with someone and feel unable to communicate. Perhaps this is how au pairs must feel? They’re not by themselves, but they’re cut off from their companions by lack of language. I’m not by myself, but it feels like it’s more trouble than it’s worth to express my thoughts. And that does make me feel solitary in a way that living alone never did.

A Visit to the Doctors

Mum has not had her medication reviewed for a long time. For some time, I have been trying to get her to go and see the Doctor and discuss the pills she takes. But she’s been digging her heels in. ‘I’m 94. I shouldn’t have to go there. He should come and see me.’ Nothing I said could convince her otherwise.

Then, just before Xmas, the pharmacist said they couldn’t repeat her prescription again without a review by the Doctor. I told mum, ‘Whether you like it or not, we have to make an appointment before the medicines run out – which means as soon as possible after the New Year.’

I took the first appointment available, and arranged for a carer to drive us to the surgery, wait with us and drive us back. In the long run, this is not much more expensive than getting two taxis and a lot less hassle as mum gets bored waiting for a cab to arrive.

Mum grumbled and grumbled over and over. The time was inconvenient, she didn’t know the carer who was coming, she didn’t feel well, she was 94 and she didn’t think she should have to go. I just gritted my teeth and concentrated on getting mum to her appointment

The day came. The carer arrived, it was someone mum knew and liked. We went round to the surgery; the doctor was polite and respectful. We discussed her medication – and the possibility of attending a memory clinic (he wasn’t very encouraging.). We came home.

Mum: ‘I should have asked the Doctor about the problem with my face and my problems at night.’

Me: ‘Why didn’t you? You could have made a list.’

Mum: Why didn’t you remind me?

Me: !!! I didn’t know you wanted to ask the Doctor about those problems. You wasted all that time complaining about having to go to the Doctors. You should have realised it was a chance to sort everything out.

This is exactly what happened with the Xmas cards. It wore me out trying to get her to write them, but when cards started arriving from friends and family, she was really pleased she had sent hers already. And, in the same way, it wore me out to get her to the doctors – now she’s frustrated because she lost her chance to sort out things she needed to sort out.

She’s always been a glass half-empty sort of person. But it’s sad when someone is so old and  could enjoy the life that’s left to her so much more, if she just tried to have a more positive attitude. Yet, after all these years she doesn’t seem to have learnt a thing….

I live here too

I don’t know if it’s the New Year, but I woke up today and I thought: I live here too. One of the reasons I’ve been so drained psychologically is that I’m continually trying to adjust to mum’s demands and needs. It is her house after all. But this morning I went out into the garage and began to unpack my books. At the moment, they are lying over the floor in the sun lounge, but tomorrow, hopefully they will get put onto the bookshelves.

My New Year’s resolution was to be more resolute. By that I mean, I must set my own boundaries. I must set timetables and goals, things I want to achieve each day – and not get sucked into the lazy acceptance of watching tv or just dithering around, waiting for her to get up, or the carer to come – or not feeling I can get out my possessions.

Mum has always been very controlling. When I was a kid I dealt with this by being ‘absent’, daydreaming or burying my nose in a book. Then I left home and kept my life private, ‘sharing’ as little as possible. Since I moved back here, I’ve been unconsciously following the same strategies. Burying my nose in a book or my computer but also, hesitating to unpack my things. When I go to someone’s house, I always study their bookshelves, to see what sort of person they are. I don’t want anyone doing that to me here!

But when I did get out my books, it was great, like meeting old friends again. And there are so many I haven’t actually read. I look forward to reading them all. And I’ve started a diary – so that I can differentiate the days; write down things I have achieved for myself, in spite of having to clean up all kinds of mess and having the same conversation over and over again!!

I’m keeping my fingers crossed for a positive 2015!

Not the best xmas ever

I wanted to write a blog post for xmas but things have been so intense and I felt so drained, I couldn’t do it till now. Xmas day started with a call to the emergency plumbers – the loo was blocked. This does happens sometimes and it often sorts itself out – but I didn’t dare risk it this time, what with it being xmas and the family coming on 26th. Anyway a chirpy chappy turned up, got out his eel and cleared the blockage.

By then it was time to cook lunch. I don’t eat meat, but I bravely attempted to cook mum a chicken breast. I was worried the oven would blow up while I was roasting chicken, vegetables etc but all went ok, and the two of us sat there in our paper hats and enjoyed our Christmas dinner! But we were running late. After clearing up, I had precisely 25 minutes of peace until it was time to watch the Strictly Xmas special. This ushered in 6 hours of tv. Half way through, I spent 15mins in the kitchen getting tea and got repeatedly shouted at: ‘Where are you? It’s Midwives.’
Boxing day was ok. The family visit was fine, and I managed to feed 7 people with a little help from the others. But when they left, I was again required to watch hours of tv. If I left the room it was ‘Where are you? It’s Victoria Wood.’ But I did get a quiet read at bedtime.

Saturday. Oh my god. Mum has a problem with constipation. She takes medication and then, instead of waiting for it to act, she gets in a panic and takes more. She does this, even though she knows what will happen – and happen it did. The only consolation was that she had managed to get into the bathroom. Otherwise there was shit everywhere. The worst thing wasn’t the horrible revolting nature of cleaning it all up but the risk of contamination. After this unpleasant experience, I had to have a stiff drink. Lunch was a little late; afterwards I put on a load of yucky washing and watched Kungfu Panda 2. Then, just as we were going to bed, there was a major bleeding incident. By the time that was sorted out and cleaned up it was after midnight. I didn’t even try to sleep till after 1. Another stiff drink and – on Sunday – another load of yucky washing!!! But I did get an hour of peace that afternoon.

I don’t mind all the hard work, but I do need some kind of space to recover from it. It’s not just that helping mum is physically exhausting, it’s also psychologically draining. I lose my equilibrium and have to ‘reboot’ my energy (viz: Kung Fu panda 2!). And this takes up so much of the precious time I have to do things for myself.

And, by the way, as I was drafting this last night, mum had another bleed, not quite so bad, tho I still didn’t get to bed till 1am. I really hope we can get through the new year without any more incidents!!!

Nightmare of the Xmas Cards

Sustained by a brief visit to some old friends who thought I needed a bit of TLC (they were right) I returned to deal with the Nightmare of the Xmas Cards.

I ‘m lucky, I have lots of friends all over the world and I like to send them Yule/ Xmas/New Year greetings. It’s a way to keep in touch. But it’s also quite a chore. And this year I’m having to do mum’s cards as well. It’s like wading through mud.

Imagine each of the following dialogues repeated over and over again and often against a constant background of TV noise:

Mum: I’m too tired to think about my Xmas cards.
Me: You don’t have to think about them. All you have to do is write your name inside the ones I’ve prepared.
Mum: I must do my cards to the family.
Me: I have already addressed them and sent them off.
Mum: I’ve had enough. I don’t want to send any more cards this year.
Me: If you don’t send them, people will think you are dead.

(I’ve done my best to make a list of people she needs to send cards to, although some of it is guesswork. Already two cards have arrived from people I hadn’t thought of.)  Then came the Great Xmas Cheque Debate.

Mum wants to know how much she gives her grandchildren at Xmas. So I look through the stubs of her old cheque books (By the way, whoever says cheques are obsolete should come and meet my ma.)

Mum: Why are these old cheque books lying around like this?
Me: You wanted to know how much you gave your grandchildren last year.
Mum: Oh. Shall I give them the same as last year? Or more?
Me: Whatever you want. Just don’t give them less than last year.
Mum: How much shall I give your brother?
Me: Whatever you want. Just don’t give him less than last year.

And then mum says… ‘What about you? Is there anything you want?’ By now, I’m beyond caring. I give what they call a hollow laugh. ‘Can we please just get these Xmas cards in the post?’

Mum’s 94 – How old does that make me?

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Mum enjoyed her birthday, although she kept forgetting how old she was. She knows she was born in 1920 but she can’t remember what year we’re in now – which throws out her mental arithmetic.
Brother and grandchildren came at the weekend. We went out and had a meal, except she didn’t enjoy herself, probably because it was too noisy and she couldn’t keep up with the conversation. (I, of course, really liked going out to a restaurant and chatting to the family!) On her actual birthday, I invited the neighbours round and we had coffee and nice cakes from M&S. This was much more low key and she had a nice time.
94 is a good age, as they say. But it started me thinking about my own age. I always said I would never end up as a single daughter, caring for an aged parent but that’s exactly what has happened. I don’t regret my decision to move in with mum. The longer I stay, the clearer it is that she needs someone here.
However, I’m no spring chicken either. The number of good years I have left to travel, dance, meet men, think straight etc may not be so many. I hate the thought that my last chance to lead a full life is trickling through my fingers like sand and I’ll never be able to get that chance back.
Mum, of course, treats me like I’m about 15. She gets upset when I can’t bend down or lean forward at an angle convenient to her. If I have to kneel rather than reach over or crouch, she gets irritated. I say: I’m not a young girl, mum.
I wonder, will I get worn out by being a carer to a demanding old woman when I’m not so young myself – or will I stay “young” because I live with someone who treats me like a teenager? Time will tell.

Blue Van Man Saves The Day – and Mends the Cooker

Moving down here, I’ve got so much to do and to sort out, life’s been a continual headache – and then, a few days ago – mum’s electric cooker blew up. Solving the problem felt like one bridge too far, but I couldn’t ignore it. We couldn’t manage with just a microwave and a toaster.
I knew nothing about buying cookers. Feeling very sorry for myself I went online, researching how to buy one – and how to get it delivered and wired in – and the old one taken away. Then my brother came and said: it’s just the fuse! And indeed, once he mended the fuse, the hotplates and grill worked again but the oven was still kaput. In brother’s opinion, the element had blown. All I needed to do was get a new one. Easier said than done.
As a newcomer to the area, I don’t have that invaluable list of recommended trades people. Mum’s neighbours suggested I went to a shop in town that sells white goods. What good advice. The shop wasn’t a big, cavernous superstore out in some retail park. It was a regular high street shop, run by two friendly chaps who, without any fuss at all, said: You need Blue Van Man. He’s efficient and he’s honest. If the appliance can’t be repaired, he’ll tell you.
Feeling hopeful, I rang the number. Amazingly, Blue Van Man happened to be on a job just round the corner. Within an hour he was in our kitchen. He said the element had indeed blown – ‘must have been quite a bang!’ – and the thermostat had also blown. He asked if I wanted to repair it? So my internet researches came in handy after all, because I knew the price he quoted me for a repair was a quarter of the price of a new oven – with all the attendant installation costs. And at mum’s age, she really doesn’t need to buy a new cooker. I asked him to repair it and, within 30 minutes, we had a functioning oven which, fingers crossed, will last for another couple of years. What a relief.
I felt like a character in a Fairy Tale, where someone is presented with an impossible task which they somehow manage to accomplish with a bit of magic, and some friendly helpers – such as my new hero, Blue Van Man!!

Conflict of Lifelines!

I managed to pack up my flat and move all my things down here without too much hassle. It seemed like it would be hard but it all went without a hitch. The only casualty was a bottle of soy sauce that lost its cap and spilt in the removal van. Most of my stuff had to be stored in the garage – it all fitted in easily. My furniture fitted into the spaces where I hoped it would fit. Everything went smoothly – until I tried to connect my broadband.
As I made my plans to move in with mum, I thought I’d be able to cope just as long as I had the internet. I planned a virtual existence, an e-life that would give me a connection to the outside world – and help keep me sane. But – when I plugged in my broadband hub, nothing happened. No internet. I phoned BT. After hanging on for 20 minutes I spoke to someone who suggested I check a few things. I did those checks but – still no internet. I began to worry. I phoned BT again and spoke to someone who suggested some other checks. Still no joy. I started to get a bit panicky. I phoned BT again and after another long wait – it was third time lucky! A young woman asked me a series of questions and – bingo – the mystery was solved – though not resolved. Mum’s emergency button, which works through the phone line, was blocking my broadband.
Our lifelines were in conflict! Mum needs that button. She’s had several falls recently and if she has another one when I’m not there, she can summon help even if she’s stuck on the floor far from the phone. But I need the internet. I rang the emergency button people in hysterics. They were quite unfazed. Oh yes, they said, it happens all the time. You just need to plug the ADSL lead into a different socket.
The next morning, at 9 am a car pulled up outside the house. A young woman came bounding in, threw herself down on the floor by the plug, pulled one thing out, put one thing in and – hey presto – everything worked perfectly, no problem at all.
I was so exhausted by this crisis that I couldn’t switch my computer on again for days!

Without a backward glance

My first day at school I did not cry and cling to my mother’s skirts like other children. I ran away across the playground without a backward glance. Over the years, my mother would often retell this story. At the end she would repeat, in a doleful voice  ‘without a backward glance’,

Yet, a lifetime later, I’m about to move back home to live with her. No one made me, but I felt I had no choice. She’s 94 and can’t cope with the world alone anymore.

Would it be easier if she went into a care home? She’s not ready for that and besides, I can’t imagine a home where she would settle. She’s not the easiest of women. And I’m used to suiting myself. Let’s see how it goes.